| Thursday, June 6 - Grant Writing Institute | |
| 7:00 AM - 8:00 AM | GWI Check-In - Room 303B |
| 7:00 AM - 8:00 AM | Mentee-Mentor Breakfast - Informal networking for Mentees and Mentors |
| 8:00 AM - 8:20 AM | Jenga!! Get to know each other! |
| 8:20 AM - 8:30 AM | Navigating TSA Successfully: Welcome & Introduction/Objectives & Agenda |
| 8:30 AM - 8:45 AM | Reflections - Reflecting on lessons learned from leading a CBO |
| 8:45 AM - 9:45 AM | Making Lemonade - Foundational knowledge and practical tips for successful grant writing |
| 9:45 AM - 10:10 AM | Psychological Safety and the Triad - Importance of collaboration among academia, healthcare providers, and advocacy organizations in advancing sickle cell initiatives |
| 10:10 AM - 10:25 AM | BREAK |
| 10:25 AM - 11:05 AM | Michigan Won!! - Strategies for effective state-level advocacy to improve sickle cell policies and access to care |
| 11:05 AM - 11:35 AM | Keeping Your House in Order - Auditing & reconciliation practices - Accountability & transparency in organizational operations - Financial relationships with academic medical centers |
| 11:35 AM - 12:00 PM | Partnering with the Pharmaceutical Industry - Guidance on navigating pharmaceutical sponsorship submissions for funding support in sickle cell initiatives |
| 12:00 PM - 12:45 PM | LUNCH |
| 12:45 PM - 2:30 PM | Workshop with Your Mentor - Collaboration between mentees and their mentors - PowerPoint presentation development for proposals |
| 2:30 PM - 2:45 PM | BREAK |
| 2:45 PM - 4:45 PM | Presentations (5 slides, 5 minutes' presentation + 5 minutes' critique/Q&A) - Presentations showcasing the outcomes of the day's workshops and collaborations |
| 4:45 PM - 5:00 PM | Closing - Final remarks, reflections, and acknowledgements |
| Friday, June 7 | |
| 8:00 AM - 6:00 PM | Registration Open |
| 1:00 PM - 7:30 PM | Exhibit Hall Open |
| 1:00 PM - 5:30 PM | Poster Viewing |
| 12:00 PM - 12:45 PM | Welcome + The State of Sickle Cell Disease |
| 12:45 PM - 1:45 PM | Access to Care Keynote Presentation |
| 1:45 PM - 2:00 PM | Break |
| 2:00 PM - 4:00 PM | The Patient Symposium |
| 3:15 PM - 3:30 PM | Coffee Break - Sponsored by Pfizer |
| 4:00 PM - 5:30 PM | Investigational New Drug, Device and Therapeutics Symposium |
| 5:30 PM - 6:30 PM | Advocating State by State in Sickle Cell Disease, A Panel Discussion |
| 6:30PM - 7:30 PM | FSCDR's Welcome Reception |
| 7:30 PM - 9:30 PM | Adult, Child and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for patients and families) |
| Saturday, June 8 | |
| 7:00 AM - 6:00 PM | Registration Open |
| 7:00 AM - 8:15 AM | Breakfast |
| 8:15 AM - 8:30 AM | 2023 Scientific Chair Welcome |
| 8:30 AM - 9:15 AM | Top Abstract Oral Presentations |
| 9:15 AM - 10:00 AM | Networking Break |
| 9:30 AM - 7:00 PM | Exhibit Hall Open |
| 9:30 AM - 7:00 PM | Poster Viewing |
| 10:00 AM - 12:00 PM | Educational Sessions - Four Concurrent Sessions Topics Include:
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| 12:00 PM - 1:00 PM | Lunch |
| 1:00 PM - 2:00 PM | Keynote |
| 2:00 PM - 3:15 PM | Plenary Session: Unmet Need: Mechanistic and Translational Studies of Sickle Cell Disease Pain as a Whole Person Health Challenge |
| 3:15 PM - 3:30 PM | Break |
| 3:30 PM - 5:45 PM | Plenary Session: Curative Options in Sickle Cell Disease Plenary Session |
| 6:00 PM - 7:00 PM | Live Poster Session |
| 7:30 PM - 9:30 PM | FSCDR's Presidential Reception - Invite Only |
| Sunday, June 9 | |
| 7:00 AM - 5:00 PM | Registration Open |
| 7:00 AM - 8:00 AM | Breakfast |
| 8:00 AM - 9:15 AM | An Update on Sickle Cell Disease from Federal Agencies |
| 9:15 AM - 10:15 AM | Scientific Keynote Presentation - Women's Health |
| 9:30 AM - 5:00 PM | Exhibit Hall Open |
| 9:30 AM - 5:00 PM | Poster Viewing |
| 10:15 AM - 12:15 PM | Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium |
| 12:15 PM - 1:15 PM | Lunch |
| 1:15 PM - 2:45 PM | Abstract Breakout Session 1 - Three Concurrent Sessions Topics Include:
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| 3:00 PM - 4:30 PM | Abstract Breakout Session 2 - Three Concurrent Sessions Topics Include:
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