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Schedule at a Glance

June 7-9, 2024
June 6 - Grant Writing Institue
(All times listed are in Eastern Time, Subject to Change)
All Sessions, including the Grant Writing Institute, will be held at the Broward County Convention Center


Thursday, June 6 - Grant Writing Institute
7:00 AM - 8:00 AM GWI Check-In - Room 303B
7:00 AM - 8:00 AM Mentee-Mentor Breakfast
- Informal networking for Mentees and Mentors
8:00 AM - 8:20 AM Jenga!! Get to know each other!
8:20 AM - 8:30 AM Navigating TSA Successfully: Welcome & Introduction/Objectives & Agenda
8:30 AM - 8:45 AM Reflections
- Reflecting on lessons learned from leading a CBO
8:45 AM - 9:45 AM Making Lemonade
- Foundational knowledge and practical tips for successful grant writing
9:45 AM - 10:10 AM Psychological Safety and the Triad
- Importance of collaboration among academia, healthcare providers, and advocacy organizations in advancing sickle cell initiatives
10:10 AM - 10:25 AM BREAK
10:25 AM - 11:05 AM Michigan Won!!
- Strategies for effective state-level advocacy to improve sickle cell policies and access to care
11:05 AM - 11:35 AM Keeping Your House in Order
- Auditing & reconciliation practices
- Accountability & transparency in organizational operations
- Financial relationships with academic medical centers
11:35 AM - 12:00 PM Partnering with the Pharmaceutical Industry
- Guidance on navigating pharmaceutical sponsorship submissions for funding support in sickle cell initiatives
12:00 PM - 12:45 PM LUNCH
12:45 PM - 2:30 PM Workshop with Your Mentor
- Collaboration between mentees and their mentors
- PowerPoint presentation development for proposals
2:30 PM - 2:45 PM BREAK
2:45 PM - 4:45 PM Presentations (5 slides, 5 minutes' presentation + 5 minutes' critique/Q&A)
- Presentations showcasing the outcomes of the day's workshops and collaborations
4:45 PM - 5:00 PM Closing
- Final remarks, reflections, and acknowledgements


Friday, June 7
8:00 AM - 6:00 PM Registration Open
1:00 PM - 7:30 PM Exhibit Hall Open
1:00 PM - 5:30 PM Poster Viewing
12:00 PM - 12:45 PM Welcome + The State of Sickle Cell Disease
12:45 PM - 1:45 PM Access to Care Keynote Presentation
1:45 PM - 2:00 PM Break
2:00 PM - 4:00 PM The Patient Symposium
3:15 PM - 3:30 PM Coffee Break - Sponsored by Pfizer
4:00 PM - 5:30 PM Investigational New Drug, Device and Therapeutics Symposium
5:30 PM - 6:30 PM Advocating State by State in Sickle Cell Disease, A Panel Discussion
6:30PM - 7:30 PM FSCDR's Welcome Reception
7:30 PM - 9:30 PM Adult, Child and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for patients and families)


Saturday, June 8
7:00 AM - 6:00 PM Registration Open
7:00 AM - 8:15 AM Breakfast
8:15 AM - 8:30 AM 2023 Scientific Chair Welcome
8:30 AM - 9:15 AM Top Abstract Oral Presentations
9:15 AM - 10:00 AM Networking Break
9:30 AM - 7:00 PM Exhibit Hall Open
9:30 AM - 7:00 PM Poster Viewing
10:00 AM - 12:00 PM Educational Sessions - Four Concurrent Sessions

Topics Include:
  • Individualized Therapy
  • Mental Health
  • Survivorship: Post-Transplant and Post-Gene Therapy
  • Stem Cell Health
12:00 PM - 1:00 PM Lunch
1:00 PM - 2:00 PM Keynote
2:00 PM - 3:15 PM Plenary Session: Unmet Need: Mechanistic and Translational Studies of Sickle Cell Disease Pain as a Whole Person Health Challenge
3:15 PM - 3:30 PM Break
3:30 PM - 5:45 PM Plenary Session: Curative Options in Sickle Cell Disease Plenary Session
6:00 PM - 7:00 PM Live Poster Session
7:30 PM - 9:30 PM FSCDR's Presidential Reception - Invite Only


Sunday, June 9
7:00 AM - 5:00 PM Registration Open
7:00 AM - 8:00 AM Breakfast
8:00 AM - 9:15 AM An Update on Sickle Cell Disease from Federal Agencies
9:15 AM - 10:15 AM Scientific Keynote Presentation - Women's Health
9:30 AM - 5:00 PM Exhibit Hall Open
9:30 AM - 5:00 PM Poster Viewing
10:15 AM - 12:15 PM Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium
12:15 PM - 1:15 PM Lunch
1:15 PM - 2:45 PM Abstract Breakout Session 1 - Three Concurrent Sessions

Topics Include:
  • Clinical/Translational
  • Clinical Trials
  • Health Services
3:00 PM - 4:30 PM Abstract Breakout Session 2 - Three Concurrent Sessions

Topics Include:
  • Basic Sciences/Translational
  • Health Services/Quality Improvement
  • Psychosocial