NOTE: All events are in Eastern Daylight Time Zone.
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Schedule at a Glance
June 7-9, 2024
June 6 - Grant Writing Institue
(All times listed are in Eastern Time, Subject to Change)
All Sessions, including the Grant Writing Institute, will be held at the Broward County Convention Center
| Thursday, June 6 - Grant Writing Institute |
| 7:00 AM - 8:00 AM |
GWI Check-In |
| 7:00 AM - 8:00 AM |
Breakfast |
| 8:00 AM - 8:15 AM |
Introductions |
| 8:15 AM - 8:45 AM |
What I would say to my younger self: Top Ten Learning Lessons from a young CBO |
| 8:45 AM - 9:15 AM |
Grant Writing Mechanics: Having a clear and fundable proposal idea and plan |
| 9:15 AM - 9:45 AM |
Outcomes Measures, Reporting |
| 9:45 AM - 10:00 AM |
Break |
| 10:00 AM - 10:30 AM |
Budgets, 990s, DUNS number, fiscal agency/administration |
| 10:30 AM - 11:00 AM |
Advocacy at the State Level |
| 11:00 AM - 11:30 AM |
Programming and Community Engagement |
| 11:30 AM - 12:00 PM |
Health Resources and Services Administration CBOs, ECHOs, training |
| 12:00 PM - 12:30 PM |
Staffing and Handling: Part-Time vs Full-Time Dilemma of CBOs |
| 12:30 PM - 1:00 PM |
Pharma as a Funder: Tips & Pointers |
| 1:00 PM - 3:15 PM |
Working Lunch: Meeting with Mentors |
| 3:15 PM - 3:30 PM |
Break |
| 3:30 PM - 5:30 PM |
Students' Presentations of Work |
| 5:30 PM |
Wrap-Up/Closing |
| Friday, June 7 |
| 8:00 AM - 6:00 PM |
Registration Open |
| 1:00 PM - 7:30 PM |
Exhibit Hall Open |
| 1:00 PM - 5:30 PM |
Poster Viewing |
| 12:00 PM - 12:45 PM |
Welcome + The State of Sickle Cell Disease |
| 12:45 PM - 1:45 PM |
Access to Care Keynote Presentation |
| 1:45 PM - 2:00 PM |
Break |
| 2:00 PM - 4:00 PM |
The Patient Symposium |
| 3:15 PM - 3:30 PM |
Coffee Break - Sponsored by Pfizer |
| 4:00 PM - 5:30 PM |
Investigational New Drug, Device and Therapeutics Symposium |
| 5:30 PM - 6:30 PM |
Advocating State by State in Sickle Cell Disease, A Panel Discussion |
| 6:30PM - 7:30 PM |
FSCDR's Welcome Reception |
| 7:30 PM - 9:30 PM |
Adult, Child and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for patients and families) |
| Saturday, June 8 |
| 7:00 AM - 6:00 PM |
Registration Open |
| 7:00 AM - 8:15 AM |
Breakfast |
| 8:15 AM - 8:30 AM |
2023 Scientific Chair Welcome |
| 8:30 AM - 9:15 AM |
Top Abstract Oral Presentations |
| 9:15 AM - 10:00 AM |
Networking Break |
| 9:30 AM - 7:00 PM |
Exhibit Hall Open |
| 9:30 AM - 7:00 PM |
Poster Viewing |
| 10:00 AM - 12:00 PM |
Educational Sessions - Four Concurrent Sessions
Topics Include:
- Individualized Therapy
- Mental Health
- Survivorship: Post-Transplant and Post-Gene Therapy
- Stem Cell Health
|
| 12:00 PM - 1:00 PM |
Lunch |
| 1:00 PM - 2:00 PM |
Keynote |
| 2:00 PM - 3:15 PM |
Plenary Session: Unmet Need: Mechanistic and Translational Studies of Sickle Cell Disease Pain as a Whole Person Health Challenge |
| 3:15 PM - 3:30 PM |
Break |
| 3:30 PM - 5:45 PM |
Plenary Session: Curative Options in Sickle Cell Disease Plenary Session |
| 6:00 PM - 7:00 PM |
Live Poster Session |
| 7:30 PM - 9:30 PM |
FSCDR's Presidential Reception - Invite Only |
| Sunday, June 9 |
| 7:00 AM - 5:00 PM |
Registration Open |
| 7:00 AM - 8:00 AM |
Breakfast |
| 8:00 AM - 9:15 AM |
An Update on Sickle Cell Disease from Federal Agencies |
| 9:15 AM - 10:15 AM |
Scientific Keynote Presentation - Women's Health |
| 9:30 AM - 5:00 PM |
Exhibit Hall Open |
| 9:30 AM - 5:00 PM |
Poster Viewing |
| 10:15 AM - 12:15 PM |
Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium |
| 12:15 PM - 1:15 PM |
Lunch |
| 1:15 PM - 2:45 PM |
Abstract Breakout Session 1 - Three Concurrent Sessions
Topics Include:
- Clinical/Translational
- Clinical Trials
- Health Services
|
| 3:00 PM - 4:30 PM |
Abstract Breakout Session 2 - Three Concurrent Sessions
Topics Include:
- Basic Sciences/Translational
- Health Services/Quality Improvement
- Psychosocial
|
